Ayrian was born on January 4, 2013, prematurely, spending her first 51 days in the world at Methodist Women's Hospital in the Neonatal Intensive Care Unit; and, approximately one year later she was diagnosed with Russell-Silver Syndrome (RSS), which causes a form of dwarfism.  In 2017 she was also diagnosed with Autism Spectrum Disorder (ASD).  

For five years our lives have been graced by the most loving, sweetest and adorable being.  Emboldened to share our daughter, her rare condition, the trials & triumphs with RSS and ASD we are compelled to continue to share her journey today and beyond. 

HE has entrusted me to be her mommy and her advocate.  It is now my responsibility to inform others and provide awareness about her uniqueness and all that it brings to her life and the lives of others. This website will serve as a platform to educate and lend a voice to all the many families who feel enveloped into some sort of "secret society" and provide hope that you are not alone! 

Our family's promise to Ayrian is to continue to provide education and awareness regarding RSS and the impacts that it will and could possibly have as she continues to grow.  Along with the website - we have also launched a personal project, Love Someone Rare, a vision brought to life inspired by our love for Ayrian. 

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Love Someone Rare is a novel and fun way to celebrate her strength and others like her who are Rare Warriors!  Medically speaking when a disease/disorder affects fewer than 200,000 people at any given time it makes them rare.  Russell-Silver Syndrome. Autism Spectrum Disorder...are a part of what makes her special.  No matter the diagnoses, disease, special traits/characteristics, etc. we all LOVE someone who's RARE.